As we face the COVID-19 Pandemic, we’re all making preparations to keep ourselves safe, like stocking up on medical supplies and food, practicing social distancing, and being vigilant about handwashing. But what are we doing to protect our mental health?
When our son was diagnosed with a rare genetic condition shortly after birth, the first question my husband and I asked was, “What do we do?”
The answer will not surprise anyone who has dealt with a rare illness: wait. Continue reading “When Your Child Is Somewhere Between ‘Sick’ and ‘Healthy’”
Not long after our beloved 13-year-old Simba passed, I came across an adorable little dog wandering in our neighborhood.
Continue reading “How My Dog Found Me – Twice”
For a while there, multitasking was the buzzword for success. Women could have it all — career, marriage, kids, friends, hobbies, beauty — through the magic of multitasking. But like shoulder pads and greed and everything else that “worked” in the ’80s, it turns out cramming a thousand things into every single moment is actually a pretty bad thing.
When the sound of my crying wakes my husband Lex in the middle of the night, it’s usually because I’ve read something incredibly sad on the internet. Abused animals, hungry children, acts of unimaginable violence — somehow, the most depressing news of the day always finds me.
“Where do you get these stories?” he asks. “Are you on the Sad Internet again?”
On Rare Disease Day, it’s important to remember that parents of medically complex children aren’t heroes; we’re just regular people doing the best we can to love our kids through difficult circumstances.
While I’m no hero, I do believe I’m a better person because of what my child and others in this community have taught me. Continue reading “How the Rare Disease Community Made Me a Better Person”
Friend via text: How have you been?
Me: “It was the best of times, it was the worst of times.”
Friend: That quote feels familiar…?
(Charles Dickens rolls in his grave.)
Everyone loves Betty White. From her brilliantly dumb portrayal of Rose Nyland on “The Golden Girls” to her game show appearances and animal activism, she’s built a reputation as a respected actress who doesn’t take herself too seriously.
People hate feminists. Even those who agree with its principles seem to be turned off by the larger idea of feminism.